Friday 12th December
Mum and Dad were very tired today because I was quite poorly all night so they stayed with me nearly all the time (I think I heard Dad say he had about 2 hours sleep). I slept all day today, except when Mum and Dad insisted on changing my nappy, all that cold air on your bits can give you quite a shock when snoozing.
My morphine and midazolam (sleepy drug) were put in a syringe driver at about 5pm today. The syringe driver has a tiny little needle which was put into my leg just below my little scar (from my muscle biopsy) which meant Mum and Dad could be sure I was getting the full dose when needed. This was much better than having the midazolam in my mouth because it tastes horrid.
Anyway, enough writing for today because I need to get some more sleep.
Message from Samuelís Mum and Dad
The very sad and painful news is that Samuel passed away around 9.20pm today. He fell asleep on his Mumís knee holding hands with both his Mum and Dad and was very very peaceful.
Samuel bought a lot of happiness to our lives and we have a lot of great memories and we hope you do too. We know he touched a lot of other peoples lives and feel extremely privileged to have had him for so long against the odds. He was a little fighter and gave us the special opportunity to get to know him and his wonderful personality.
He made us fall completely in love with him and gave us something that can never be replaced.
We will miss him greatly and never never forget him.
Mum and Dad xxxxxx